WHEREAS, The disorder can lead to blindness, deafness, bone
abnormalities, disfigurement, learning disabilities, disabling
pain and cancer; and
WHEREAS, There are three different types of
neurofibromatosis: neurofibromatosis type 1, neurofibromatosis
type 2 and schwannomatosis; and
WHEREAS, Signs of neurofibromatosis type 1 include light
brown spots on the skin, known as café au lait spots, bumps
known as Lisch nodules on the iris of the eye and freckles on
the groin or armpits; and
WHEREAS, Neurofibromatosis type 1 is one of the country's
most common genetic disorders occurring in approximately 1 in
2,500 births; and
WHEREAS, Neurofibromatosis type 2 is far less common,
occurring in 1 in 60,000 people, and is typically characterized
by tumors that grow on the nerves of the inner ear; and
WHEREAS, Schwannomatosis is a rarer form of neurofibromatosis
for which symptoms typically appear between ages 25 and 30; and
WHEREAS, Schwannomatosis often forms on the spinal or cranial
nerves and leads to symptoms like chronic pain or loss of
muscle; and
WHEREAS, Instances of neurofibromatosis occur due to
mutations that either occur during conception or are passed down
genetically through the parents; and
WHEREAS, Family history, physical exams and genetic tests are
currently used to diagnose neurofibromatosis in patients; and
WHEREAS, While there is currently no cure available, there
are multiple forms of treatment for patients dealing with
neurofibromatosis; and
WHEREAS, Mild instances of neurofibromatosis often do not
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